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Co-founder of ALS Ice Bucket Challenge dies at 37

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A co-founder of the social media ALS ice bucket problem, which has raised greater than $200 million worldwide for Lou Gehrig’s illness analysis, died on Sunday on the age of 37, based on the ALS Association.

Pat Quinn was recognized with Lou Gehrig’s illness, also referred to as amyotrophic lateral sclerosis, in 2013, a month after his 30th birthday, the organisation mentioned in an announcement saying his dying.

Also learn: Ice bucket problem co-founder drowns in US diving accident

“Pat fought ALS with positivity and bravery and inspired all around him,” the affiliation mentioned.

“Those of us who knew him are devastated but grateful for all he did to advance the fight against ALS. Our thoughts are with the Quinn family and all of his friends and supporters. Pat was loved by many of us within the ALS community and around the world,” the affiliation added.

In 2014, Mr. Quinn noticed the ice bucket problem on the social media feed {of professional} golfer Chris Kennedy, who first dared his spouse’s cousin Jeanette Senerchia to take a bucket of ice water, dump it over her head, publish a video on social media and ask others to do the identical or to make a donation to charity. Ms. Senerchia’s husband had ALS.

Mr. Quinn and co-founder Pete Frates, together with their groups of supporters, helped popularise the problem. The ALS Association mentioned Mr. Quinn knew it was the important thing to elevating ALS consciousness, calling it the best social media marketing campaign in historical past.

Frates, a former Boston College baseball participant, died in December 2019 on the age of 34.

When the 2 picked it up, the phenomenon exploded, the organisation mentioned.

Thousands of individuals participated within the viral development, together with celebrities, sports activities stars and politicians — even Donald Trump earlier than his election and cartoon character Homer Simpson. Online movies have been seen tens of millions of instances.

Also learn: Obama pours chilly water on Ice Bucket Challenge

It dramatically accelerated the struggle in opposition to ALS, resulting in new analysis discoveries, expanded take care of folks dwelling with ALS, and important funding from the federal government in ALS analysis, the organisation’s assertion mentioned.

Lou Gehrig’s illness, named after the New York Yankees nice who suffered from it — is also referred to as ALS or motor neuron illness. It is a progressive neurodegenerative illness that results in paralysis because of the dying of motor neurons within the spinal wire and mind. There isn’t any identified remedy.

The organisation added that Mr. Quinn continued to boost consciousness and funds after popularising the problem. In 2015, the affiliation honoured him, amongst others, as ALS Heroes — an award given to folks dwelling with the illness who’ve had a big constructive impression on the struggle in opposition to it.

On the fifth anniversary of the problem, Mr. Quinn, who was from Yonkers, New York, addressed a crowd in Boston. “Nobody knew the Ice Bucket Challenge would become a worldwide phenomenon, but we united as one because that is what it takes to change a disease like ALS,” he mentioned.

“There are warriors all over the world unwilling to accept it as a death sentence. We will never stop fighting together. I will not leave this Earth until I know the next person diagnosed with ALS has a real plan to live with this disease, not just die from it,” he added.

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